My name is yannick-robin, I am a Manhattan, NYC-based two-spirit [they/he] Boricua multidisciplinary artist and activist with a rare disease. After Berklee College of Music, I began working with nonprofits in 2020, most notably working for Imara Jones (one of TIME Magazine's 100 most influential people of 2023), owner of TransLash Media, where trans stories are centered in order to save trans lives. While under her wing, I was nominated for a Webby Award as an associate and digital producer for the TransLash Podcast with Imara Jones, worked on The Anti-Trans Hate Machine: A Plot Against Humanity series as a producer and fact checker, and wrote obituaries for my TGNC siblings lost to violence in the United States and its Territories (which is 90% fact checking the person's name and the cause of death, and detailing whether or not it is reflected in the same way everywhere, based on the next of kin's relationship to that person being TGNC, more on this here), digital accessibility work, among other tasks. I have since then worked for a publication, TalkDeath (read Racial Disparities and Discrimination in the Death Care Industry, here), focusing my writing on Queer and BIPOC end-of-life preparations and equality, as well as have made strides as a disability activist within the performance space, being Off-Broadway in the first TGNC Theatre Festival in the professions history, + being the first wheelchair user to perform in several iconic regional theatres of the US (#saverickypotts, which now has 8.6 million views and counting). I currently volunteer with the National Organization for Rare Disorders and Diseases, and will be a part of the upcoming rebranding of the National Hemophilia Foundation, to include a broader range of rare blood diseases, like the one I have. The media hub for all my works and online community is yannickmirko.com where you can find Rare Disease Daily, live performances, visual art, music, short films, and more.